guppie01 0 #1 August 24, 2011 A man goes in for a routine medical exam only to find out that he has a rare form of cancer that has proven does not respond to regular approved medical treatment (ie, chemo, radiation, etc.). The doctors tell him about an experimental treatment, but there are no guarantees. The man decides to try the experimental treatment, which has such adverse side effects he now feels worse than before he even knew he had cancer. After the first round there is no marked improvement. The doctors tell him there is a second experimental drug that may help, however after further discussion the man finds out that the side effects of this second drug are even worse than the first. At best, the doctors tell the man even with the drugs his life expectancy is 1 maybe 2 years... What would you do? G"Let's do something romantic this Saturday... how bout we bust out the restraints?" Raddest Ho this side of Jersey #1 - MISS YOU OMG, is she okay? Quote Share this post Link to post Share on other sites
LisaH 0 #2 August 24, 2011 Stop treatment.Be yourself! MooOOooOoo Quote Share this post Link to post Share on other sites
guppie01 0 #3 August 24, 2011 Quote I voted cash in everything. I feel that if i'm going to die anyways, i'd rather die as painless a death as possible all while enjoying the finer things in life in my last days. If suffering gives me an extra year or two, i don't feel it's worth it. Thanks for the comment. I'm curious to hear from the folks that opted for the experimental treatment and their reasoning behind it. g"Let's do something romantic this Saturday... how bout we bust out the restraints?" Raddest Ho this side of Jersey #1 - MISS YOU OMG, is she okay? Quote Share this post Link to post Share on other sites
dzdiva 7 #4 August 25, 2011 I've been on both sides of this issue. I worked in the cancer field for many years and my father is a survivor, but still has maintenance chemo every 6 months. I also have friends that have gone through treatment. I'm all about quality of life, however depending on age and whatnot I believe in fighting the good fight. I have never been a believer in doctors telling people you have so many years, so many months, etc. because I think that makes people just give up. I happen to think life is worth fighting for, but like I said quality not quantity is so very important. I want to spend my last days, weeks, years with a little dignity and surrounded by those I love. Also, they should make these decisions for themselves not for the family's sake."It's not just a daydream if you choose to make it your life..." Quote Share this post Link to post Share on other sites
kbordson 8 #5 August 25, 2011 I would do a sh*t load of research on study protocols. I would know what my CT/PET scans showed. I would compare on a PERSONAL level what the quality of life was BEFORE the first round... and then now... and anticipated crappiness with the new. I would try to weigh my ability to deal with the meds vs. my curiosity and desire to try to fight it/ to add to the research for future patients. But... I would know my limits and be unapologetic when my point was hit. I would then use what time I might have left to ENJOY the experience of life ... even if it meant embracing death. Quote Share this post Link to post Share on other sites
Squeak 17 #6 August 25, 2011 Quote Quote I voted cash in everything. I feel that if i'm going to die anyways, i'd rather die as painless a death as possible all while enjoying the finer things in life in my last days. If suffering gives me an extra year or two, i don't feel it's worth it. Thanks for the comment. I'm curious to hear from the folks that opted for the experimental treatment and their reasoning behind it. g How old am I? My answer might be different if I'm in my 20s With the side effects are they long lasting? Debilitating? For me there's a few unanswered Q there I would need more info. But at my age it would totally depend on quality of life, if the treatments are bearable then i would continue. I'm not the "give up and wait to die" kind of guy.You are not now, nor will you ever be, good enough to not die in this sport (Sparky) My Life ROCKS! How's yours doing? Quote Share this post Link to post Share on other sites
BIGUN 1,402 #7 August 25, 2011 I'm going to continue treatment. I have a four year old daughter. I'm going to fight for every last moment I can get with her.Nobody has time to listen; because they're desperately chasing the need of being heard. Quote Share this post Link to post Share on other sites
skydiver30960 0 #8 August 25, 2011 The variety of answers in this thread highlight one of the nice things about our medical system: you can make your own decisions. I like kbordson's point about making an INFORMED decision. But, beyond that, whatever you decide is OK because it's what you decide for yourself. Make sure your families know your wishes. If there is ANY question or concern about your desires being misinterpreted, write a living will and get it into the hands of several family members. It was always horrible to watch a patient languish in the ICU when the decision-maker wasn't ready or able to make the decision to withdraw care while the rest of the family sat around muttering "he wouldn't want this..." Elvisio "hard part of the job" Rodriguez Quote Share this post Link to post Share on other sites
JerryBaumchen 1,434 #9 August 25, 2011 Hi agent, Quote I feel that if i'm going to die anyways, So, do you know something the rest of us would like to know. Death awaits all of us, JerryBaumchen PS) I voted as you did. IMO life is not about quantity but quality. Quote Share this post Link to post Share on other sites
guppie01 0 #10 August 25, 2011 Thanks everyone, it's been great to see all the comments... I've had several discussions with my husband and family members on this, and not surprisingly the age factor came into play quite a bit. The man in the thread is my uncle. He is mid 60's, was an environmental engineer and was exposed to some crazy stuff in the military both in the States and Overseas which the docs believe contributed to his cancer. He has reached out to the family with the decision to not continue treatments in hopes of receiving all our blessings. It's not really up to us to decide or not, but he loves his family so much that it's important to him to know that we will support him either way.I don't feel he is giving up, I feel he is embracing what time he has left.xoxo"Let's do something romantic this Saturday... how bout we bust out the restraints?" Raddest Ho this side of Jersey #1 - MISS YOU OMG, is she okay? Quote Share this post Link to post Share on other sites
npgraphicdesign 3 #11 August 25, 2011 QuoteThanks everyone, it's been great to see all the comments... I've had several discussions with my husband and family members on this, and not surprisingly the age factor came into play quite a bit. The man in the thread is my uncle. He is mid 60's, was an environmental engineer and was exposed to some crazy stuff in the military both in the States and Overseas which the docs believe contributed to his cancer. He has reached out to the family with the decision to not continue treatments in hopes of receiving all our blessings. It's not really up to us to decide or not, but he loves his family so much that it's important to him to know that we will support him either way. I don't feel he is giving up, I feel he is embracing what time he has left. xoxo Sorry to hear that your uncle and his family and you are going through this. Ultimately, it's his choice, and hopefully all of his family will stand behind him whatever choice he makes. I couldn't answer your question without being in the situation and being well informed about my option. A lot of factors are involved, including family, what point your life is at, how old you are, etc. Quote Share this post Link to post Share on other sites
guppie01 0 #12 August 25, 2011 Thanks, it was pretty tough for all of us when he was first diagnosed and it weighs heavily still.Yeah, I kept it vague intentionally to hear what critical factors one would use in the decision making process, and to keep the personal aspect aside.xoxo"Let's do something romantic this Saturday... how bout we bust out the restraints?" Raddest Ho this side of Jersey #1 - MISS YOU OMG, is she okay? Quote Share this post Link to post Share on other sites
Squeak 17 #13 August 25, 2011 Sorry to hear Gia, I lwould like to think I would choose a similar path, I think it would be more important to spend quality time with loved ones than mere time.You are not now, nor will you ever be, good enough to not die in this sport (Sparky) My Life ROCKS! How's yours doing? Quote Share this post Link to post Share on other sites
JerryBaumchen 1,434 #14 August 25, 2011 Hi guppie, QuoteIt's not really up to us to decide or not This is why, every year I donate to the Death With Dignity cause. JerryBaumchen An old guy Quote Share this post Link to post Share on other sites
fossg 0 #15 August 25, 2011 Gia there is nothing worse than watching a loved one die slowly and with no dignity Quote Share this post Link to post Share on other sites
shropshire 0 #16 August 25, 2011 Cash in everything & Max out as many credit cards and loans that I can get hold of. and party like I'm not going to be here tomorrow.. (.)Y(.) Chivalry is not dead; it only sleeps for want of work to do. - Jerome K Jerome Quote Share this post Link to post Share on other sites
BIGUN 1,402 #17 August 25, 2011 QuoteGia there is nothing worse than watching a loved one die slowly and with no dignity I've heard this many times and would contend that there is plenty of dignity in "the fight." It is we who look at them and wish for them to go "in peace" the final hours because it would make us feel less helpless. I've seen that on more than one occasion also and its not wrong to feel that way. I've been dead four times now and each time the doctors have made some comment about "not supposed to be here." While I understand the expression of quality of time versus "mere" time. Once one surrenders to that position, they've pretty much rolled over and died at that point. As long as my eyes are working and I'm still breathing and have brain activity.. I can hold someone's hand and look out the window at the sky. Now having said that, I do have a living will and family is apprised (one proctor is the head doctor of a hospital and my niece) all of whom know exactly what I want. If the two doctors agree that I would pass off life support AND things are black to me (coma, lack of brain activity, etc.), then yes, pull the plug. I'm an Organ Donor.Nobody has time to listen; because they're desperately chasing the need of being heard. Quote Share this post Link to post Share on other sites
airtwardo 7 #18 August 25, 2011 ...then yes, pull the plug. I'm an Organ Donor. Who the heck are YOUR organs gonna fit? I do agree with you to a point, regarding trying everything possible for even an extra day...until that burden becomes too high on the loved ones. My dad was pretty sick for about 5 years, the physical and financial drain on my mother nearly caused her to follow him to the grave. I know he wouldn't have wanted her to have to go through what she did because he was ill, I wouldn't want to see my family suffer along with me either. However if my fight were to have a minimal effect on my loved ones, you can bet I'd be in there throwing hay-makers until the last round. The worst day living, is still better than the best day dead. ~ If you choke a Smurf, what color does it turn? ~ Quote Share this post Link to post Share on other sites
pincheck 0 #19 August 25, 2011 it will depend on your situation at the time you will more likely find single people will vote for cash in everything if i was single i would do that but i am not and i voted for what i think family people would more that likely vote due to their situation And provide as best for the family as possible. If there was no hard and sure ways of beating it i very much doubt i would continue with the treatment. Try and enjoy my time with family and friends as much as possible. Nothing is forever we do the best we can while we are here guppie Billy-Sonic Haggis Flickr-Fun Quote Share this post Link to post Share on other sites
Calvin19 0 #20 August 25, 2011 I voted for go for the treatment. There is something to be said about helping out experimental treatments. Edit: irrelevant opinions deleted. I did not realize how close to home this thread was. Even though it is the bonfire, I don't have any intention of stepping on someones feelings. I hope no one is quoting me right now. Quote Share this post Link to post Share on other sites
guppie01 0 #21 August 25, 2011 Hey Calvin, I didn't see the opinions, but you have a right to your feelings on the situation. I wouldn't have taken offense, I am very curious. like I said I originally kept it vague, I'm not looking for the pitty replies, I'm looking for honest feedback. All good! g "Let's do something romantic this Saturday... how bout we bust out the restraints?" Raddest Ho this side of Jersey #1 - MISS YOU OMG, is she okay? Quote Share this post Link to post Share on other sites
1888 0 #22 August 26, 2011 I voted for the experimental treatment, as I would like to live a long life. Having said that I know I could opt out if needed. Quote Share this post Link to post Share on other sites
CSpenceFLY 1 #23 August 26, 2011 Stop treatment and start robbing banks and filling out credit card apps. Quote Share this post Link to post Share on other sites
wmw999 2,534 #24 August 26, 2011 At this stage, I'd seriously consider making my peace with whatever happens without the treatment. That includes making time for the people in my life, because they're what will be left of it after I die. It also means thinking carefully about what I want to happen when and after I die, so that I can communicate it while I'm able. That helps both me and others. BUT: I'm not all that young, and I don't have young children, or grandchildren on the way. Any of those could easily influence my decision. Wendy P.There is nothing more dangerous than breaking a basic safety rule and getting away with it. It removes fear of the consequences and builds false confidence. (tbrown) Quote Share this post Link to post Share on other sites
jumpsalot-2 3 #25 August 26, 2011 Quote Hey Calvin, I didn't see the opinions, but you have a right to your feelings on the situation. I wouldn't have taken offense, I am very curious. like I said I originally kept it vague, I'm not looking for the pitty replies, I'm looking for honest feedback. All good! g Quote Since he has told you what he wants, Smile, say I love you, take him on his favorite road trip or other vacation destination, and never mention his condition again. Let him live his life. Be his best friend until the end. Life is short ... jump often. Quote Share this post Link to post Share on other sites