skybytch 273 #1 February 15, 2002 One of my best friends when I was a kid and teenager was my cousin Tim; since his older brother was known as Mr Bill, we all called Tim "Spot" . Two years younger than me, Spot and I hung out a lot. We lived in the same small town and attended the same schools. We played trucks in the dirt, hiked the trails around town, rode our bikes everyplace, walked our 4H project lambs through downtown... and when we got older we cruised around in my car and partied together too. After I graduated we kinda drifted apart and didn't hang out together much, but there was still a bond; we'd still see each other around town and at holidays and we always had fun catching up with each other's lives and laughing about the things we'd done.Spot was diagnosed with Juvenile Diabetes when he was in second grade. Every day since then he's had to "shoot up" with insulin one to three times a day and watch carefully what and when he ate. He got married and had a son 12 years ago; Kyle was the light of Spot's life, especially after his wife decided that she didn't want to be a wife or mother anymore and left them.Spot got tired of the small town we grew up in a few years after I left there. He got a seasonal job with CalTrans up in the Sierras and was loving what he was doing; being able to go fishing and skiing and generally enjoy nature. It was snowing and icy one day when he was headed out to work; he slipped on a patch of ice on his deck and ended up falling 20 feet or so and breaking both femurs and his pelvis. That sucked, but his mom took him and Kyle in and took care of them until Spot was back on his feet six months later.He tried to get back on with CalTrans after he recovered but there were no positions left. He ended up moving up to Spokane, Washington to attend a tech school; he'd gotten a computer while he was recovering from his injuries and decided he wanted to learn more about them. He'd been in school, doing well, for a few months when both of his kidneys shut down. This is pretty common with diabetics. After he got stabilized and on dialysis and out of the severe depression he went into when his body failed him, he was placed on a waiting list for two kidneys and a pancreas. Everybody in the family, including my son, has offered a kidney but we were told it would be better for him to get all three organs from one person. So he's been getting dialysis three times a week and waiting for the pager to go off for two years now.He's now going rapidly downhill. His blood sugar is going all over the place; a couple days ago he was chatting online with a friend in New York when he started typing gibberish. Luckily she is a transplant survivor and knew what was up; she got offline and called 911 in his area code and got paramedics on the way to help him out. They knocked on the door but he was so out of it he didn't know to answer it. They ended up calling the cops to break down the door. When the cops got in the house, first thing they saw was needles all over the bathroom. So of course they assumed he's a heroin addict. Spot's out of it and combative, so what do they do? You got it... handcuff him and wrestle him to the ground. Meanwhile the paramedics are trying to tell them that he's a diabetic, they got a call and to back off so they could help him. Finally the cops realized what was happening and let the paramedics give him glucose. Perked Spot right up, but as soon as he sees all these strangers in his house he got combative again. The paramedics managed to get more glucose down him and get him stabilized. Cops apologized and left, the paramedics talked Spot into a trip to his doctor.It's very likely that my 34 year old cousin isn't going to live long enough to get the transplant that could save his life. He's not going to see his som graduate from junior high, much less high school. I'm going to lose one of my best friends someday very soon. I can't even begin to express how much this hurts.If you aren't an organ donor, please, please, please, become one now. You may not be able to save my cousin but your death could mean life, vision, mobility for many other people. There are thousands and thousands of people waiting for organ transplants; most of them die before an organ is available. Don't let your death mean nothing.... you can live on not just in your family and friends hearts and minds, but in someone you've never met's body.pull and flare,lisa--What would Scooby Doo? Quote Share this post Link to post Share on other sites
MarkM 0 #2 February 15, 2002 That sucks Lisa. I hope your cousin gets his tranplants. My father went through heart failure for several years and spent his last 6 months in a hospital. He was never an organ transplant candidate, but did a try test program for a left ventrical pump. Being sick for a long time or being the loved one for someone who has a long term illness is hard.Best you can do is to be there for them, it may not feel like enough, but really it's the number one thing they need. Quote Share this post Link to post Share on other sites
TequilaGirl 0 #3 February 15, 2002 Hey guys - at least those who live in Texas...Last time I checked your drivers's license wasn't enough....so please have directives with your immediate family. Even though you are a donor on your license they won't take your organs without a directive...if this has changed please let me know. Thanks - and Lisa I hope all gets better for you and your family. Quote Share this post Link to post Share on other sites
nws01 0 #4 February 15, 2002 Lisa,Words can not express the emotional feelings you have right now. I have lost my mother and my best friend before I was 21 and I can not express the feelings I had when I knew they were sick and there was very little I could do. These times have made me who I am today at 26 years of age.These are times when your you are very aware of your feelings and wishes.I can only send good vibes your way and hope that he gets the transplants he needs to overcome this. If there is anything any of us can do please do not hesitate to let us know.A.ll F.orever F.riends,Nathan Quote Share this post Link to post Share on other sites
tigra 0 #5 February 15, 2002 So sorry to hear about this Lisa. My thoughts and prayers are with him. I hope he hangs on and gets the transplants he needs. He sounds like a great guy.This may sound kind of morbid, but I've made it pretty clear to anyone who is close to me if I should die..... harvest what you can, burn the rest, drop my ashes out of a plane and have a big party.Blue ones,maura Quote Share this post Link to post Share on other sites
Kris 0 #6 February 15, 2002 Lisa,You don't know how close to home this hits. I lost my fiance a couple of years back due to complications with her juvenile diabetes. She was on the transplant list for kidneys and a pancreas as well. Her heart finally gave out during the operation to amputate her other leg. I am a card-carrying organ doner and I give generously to diabetes charities. The problem is that 90% of the people out there don't understand diabetes and don't understand the staggering amount of complications that are caused by it.Kris Quote Share this post Link to post Share on other sites
Zennie 0 #7 February 15, 2002 My thoughts and best wishes go out to you & Tim. Try to keep a positive spirit. It's the best medicine at times like this.I know all too well the life of a diabetic. My wife Liz is a MODY (adult onset insulin dependent type II) diabetic. We have a very good friend who is a brittle type I and had to have a kidney transplant. She thought she was going to die as well but is fine now. So things can work out.Lia & I had a scare in Las Vegas about 2 years ago. We were at dinner and she started showing signs that she was low. First she started staring blankly, not responding to anything. Then she went into convulsions. We called the paramedics and it took them about 5 minutes to show up. Felt like and eternity to me and all I could think of was "She can't die now. Not like this." I honestly have never been that scared and felt that helpless in all my life. It's a sickening feeling. I feel for both of you."Zero Tolerance: the politically correct term for zero thought, zero common sense." Quote Share this post Link to post Share on other sites
Jessica 0 #8 February 15, 2002 QuoteLast time I checked your drivers's license wasn't enough....so please have directives with your immediate family.This is true...it's an uncomfortable conversation but it's so important. I'm sorry, Lisa.... Quote Share this post Link to post Share on other sites
ltdiver 3 #9 February 15, 2002 So sorry, Lisa, for your family's present challenge. I work with diabetics all the time in my profession and the angst they and their families go through pulls at my heart everytime.In CA, at least last time I renewed my D/L, they had a little pink sticker that you put on the front of your card and a place to sign on the back for organ donor permission. I've carried this with me since I was 16. If there is other paperwork to be submitted please let me know. ltdiver__________________________________________http://www.discover.net/~ltdiver Quote Share this post Link to post Share on other sites
fred 0 #10 February 15, 2002 QuoteI've carried this with me since I was 16. If there is other paperwork to be submitted please let me know.I'm not familiar with the state laws that might ask for paperwork, but I'd like to stress that it is far more important to let your family and friends know what your wishes are. The license is a step in the right direction, but if your family steps forward and says that you would not want your organs donated, the word of your family will likely override what you might have on your license.It can be a morbid conversation, but let them know that you want to donate. That in the unfortunate possibility of your death, you want to try and help others continue to live.There is other paperwork you can fill out, including a "living will". Here in Michigan, a living will is not accepted, but we have another form (and unfortunately I can't think of the name of it), that I have on file with all the local hospitals stating that I do want to be removed from life support if diagnosed with "Persistent Vegitative State" or "Braindeath". It also says that I want to be given narcotics, even addictive ones, if it will help ease my pain. And lastly, it declares my wishes in the case of my death. Primarily, I want to donate any organs that can help somebody. It also states that, in the event that my organs can't help anybody, I want to donate my body to science (read: left for medical students to train with). I'm glad I have this information on file, and I think I've thoroughly expressed my views to all of my current friends and my close family. A lot of them don't understand, or agree, which makes me sad, but they know and will respect my wishes. Quote Share this post Link to post Share on other sites
skymedic 0 #11 February 15, 2002 Not likely...but will.....I work for an organ bank...and will when I move back to chicago....you need to have all your family agree...if there is one dissenting opinion....we wont take anything.....dont just give your organs...give your tissue too!!!!please...we need that also...marc"...a mind stretched with new idea's will never regain its shape" Quote Share this post Link to post Share on other sites
SkyDekker 1,465 #12 February 15, 2002 Lisa,Not sure what to say, but I am sorry and I am a organ donator..bsbdSkyDekker"We cannot do great things, only small things with great love" Mother Theresa Quote Share this post Link to post Share on other sites
Muenkel 0 #13 February 15, 2002 My prayers are with you and your cousin.Thanks for taking the time to think of others right now."I am a victim of my environment."Chris Quote Share this post Link to post Share on other sites
TheMarshMan1 0 #14 February 15, 2002 Sorry to hear that Lisa. My thoughts are with you both. If it helps (and someday I hope it does), I've been an organ donor since I was 16.... Quote Share this post Link to post Share on other sites
Beachbum 0 #15 February 16, 2002 My deepest sympathy ... one of my best friends just lost a 21 yr. old nephew in very similar circumstances. He got a virus they just couldn't get rid of because of the other complications ... so sad to lose one that young. Quote Share this post Link to post Share on other sites